Researchers at McMaster and affiliated hospitals, as well as The Centre of Addiction and Mental Health (CAMH), have developed patient-reported outcome instruments (PRO) that have been clinically validated for use as end points in large scale clinical trials for new drugs or treatment options for a wide range of diseases, or to monitor patient progress in a healthcare setting. Several of these have been translated into several languages for use around the world.
Click on the links below to learn more about these tools or fill out the online copyright request form if interested in licensing. If there are any further questions or inquiries, please email email@example.com.
Tools developed at McMaster and affiliated hospitals:
The ACNE-Q is a patient-reported outcome instrument for patients with acne and/or acne scars.
The CDS-AYA is a valid screening tool to measure distress and identify cancer survivors that need support.
The BODY-Q is a patient reported outcome instrument designed to evaluate outcomes for adult patients who are obese, undergo weight loss through diets, exercises, and/or bariatric surgery.
The CHEQOL is a validated self-report and parent proxy respondent for health-related quality of life. CHEQOL measures how children 8 years and older with epilepsy feel in relationships and how they are affected by the disease.
The CHQ is a validated tool to measure longitudinal change over time of patients with chronic heart disease or heart failure.
The CLEFT-Q is a validated patient reported outcome instrument designed for patients with cleft lip and/or palate aged 8-29 years measuring facial appearance, facial function, and quality of life.
The CRQ is a validated instrument used to measure health-related quality of life in patients with chronic airflow limitation. Patients report their dyspnea, fatigue, and emotional function during important daily activities.
The EAR-Q is a patient reported outcome instrument designed for patients with ear conditions, measuring the appearance of their ears and postoperative adverse effects.
The FACE-Q is a patient-reported outcome instrument for patients with conditions associated with facial difference aged 6 to 29 years.
The GRCQ is a validated questionnaire that provides a global measure to confirm, interpret and generalize findings of health-related quality of life instruments or outcomes. It interprets questionnaire scores with patients participating in controlled trials and in planning new trials.
The GMFM is an observational instrument validated to measure change in gross motor function over time in children with cerebral palsy.
The GMFCS is a 5-level classification system that describes the gross motor function of children and youth with cerebral palsy on the basis of their self-initiated movement with particular emphasis on sitting, walking, and wheeled mobility.
HIV Disability Questionnaire (HDQ):
The HDQ is a self-administered questionnaire developed with the aim to describe the presence, severity, and episodic nature of disability experienced by adults living with HIV.
Please see the HDQ Request Form.
Spray drying process for the production of thermally stable adenoviral vectors.
The IBDQ is the gold standard in inflammatory bowel disease research. It is a validated tool to measure health-related quality of life in adult patients with inflammatory bowel disease, ulcerative colitis, or Crohn’s Disease.
The MPOC is a questionnaire for parents and service providers, to better understand and measure the actual experiences and behaviours of those who work with children with long-term health or developmental problems and their families.
The MyTransition Application is a software tool that provides an easily and readily accessible central location for young adults with chronic health outcomes to track their transition experiences, keep contacts in one place, and improves communication with their health team.
The PCOSQ is a validated questionnaire measuring concerns in women with polycystic ovary syndrome including emotions, body hair, weight, infertility, and menstrual problems.
The PDAI is a validated index that quantifies severity and important changes in perianal disease.
The PSST is validated screening tool to identify women who suffer with Premenstrual Syndrome (PMS) or Premenstrual Dysphoric Disorder (PMDD).
The SCAR-Q is a patient-reported outcome instrument for patients with surgical, traumatic, and burn scar.
The QUEST is a validated outcome measure designed to evaluate movement patterns and hand function in children 18 months to 8 years with cerebral palsy.
The Transition-Q measures self-management skills in healthcare in adolescents aged 12 to 18 years across a broad range of chronic health conditions.
Tools developed at the Centre for Addiction and Mental Health (CAMH) in Toronto:
A novel and easy to administer self-report measure of illness awareness in alcohol misuse.
A novel and easy to administer self-report measure of illness awareness in problem and pathological gambling.
A novel and easy to administer self-report measure of illness awareness in substance misuse that can be easily tailored to any substance.
One of the most widely used research and clinical tools for measuring the severity of alcohol dependence and assessing clients with alcohol problems.
BASIS is a novel and easy to administer measure of insight into illness scale in metabolic syndrome, as related to hypertension.
DAS is a novel and easy to administer measure of insight into illness scale for use in diabetes.
The DAST-10 provides a brief, simple, practical, but valid method for identifying individuals who are abusing psychoactive drugs. This instrument takes approximately 5 minutes to administer and may be given in either a self-report or in a structured interview format.
Similar to the DAST-10 but with its additional 10 items provides a broader assessment of content areas intended for clinical assessment and research purposes.
The Drug-Taking Confidence Questionnaire (DTCQ), a companion tool to the IDTS, is easy to use and allows substance use counsellors and researchers to identify a client’s self-efficacy in relation to 50 drinking situations.
A clinical tool that allows substance use counsellors and researchers to assess the situations in which a client has used alcohol over the last year. The IDTS can be used in both individual and group counselling programs with clients whose substance use problems range from mild to severe.
The Drug-Taking Confidence Questionnaire (DTCQ), a companion tool to the IDTS, allows substance use counsellors and researchers to identify a client’s self-efficacy in relation to 50 drug-taking situations.
A clinical tool that allows substance use counsellors and researchers to assess the situations in which a client has used alcohol over the last year. The IDTS generates a separate profile of risk situations for each substance and can be used in both individual and group counselling programs with clients whose substance use problems range from mild to severe.
Novel and easy to administer self-report measure of illness awareness in substance misuse that can be easily tailored to any substance. The measure assesses the core domains of illness awareness, including general illness awareness, accurate attribution of symptoms, awareness of the need for treatment, and awareness of negative consequences. With 10-point Likert scales for each item, this scale has the capacity to detect small changes in illness awareness.
OASIS is a novel and easy to administer measure of insight into illness scale in obesity and related syndromes.
An easy to administer insight scale with both self-report and clinician-rated versions that would be sensitive to small changes in insight over brief periods of time, and assess the multidimensionality of insight.