Researchers at McMaster and affiliated hospitals, as well as The Centre of Addiction and Mental Health (CAMH), have developed patient-reported outcome instruments (PRO) that have been clinically validated for use as end points in large scale clinical trials for new drugs or treatment options for a wide range of diseases, or to monitor patient progress in a healthcare setting. Several of these have been translated into several languages for use around the world.
Click on the links below to learn more about these tools or fill out the online copyright request form if interested in licensing. If there are any further questions or inquiries, please email milo@mcmaster.ca.
List of tools developed at McMaster and affiliated hospitals:
Transgenic Mice
Genetically engineered mouse models (GEMMs) of breast cancer.
ACNE-Q
The ACNE-Q is a patient-reported outcome instrument for patients with acne and/or acne scars.
Cancer Distress Scales for Adolescent and Young Adults (CDS-AYA)
The CDS-AYA is a valid screening tool to measure distress and identify cancer survivors that need support.
BODY-Q
The BODY-Q is a patient reported outcome instrument designed to evaluate outcomes for adult patients who are obese, undergo weight loss through diets, exercises, and/or bariatric surgery.
Health Related Quality of Life in Children with Epilepsy (CHEQOL)
The CHEQOL is a validated self-report and parent proxy respondent for health-related quality of life. CHEQOL measures how children 8 years and older with epilepsy feel in relationships and how they are affected by the disease.
Chronic Heart Failure Questionnaire (CHQ)
The CHQ is a validated tool to measure longitudinal change over time of patients with chronic heart disease or heart failure.
CLEFT-Q
The CLEFT-Q is a validated patient reported outcome instrument designed for patients with cleft lip and/or palate aged 8-29 years measuring facial appearance, facial function, and quality of life.
Chronic Respiratory Disease Questionnaire (CRQ)
The CRQ is a validated instrument used to measure health-related quality of life in patients with chronic airflow limitation. Patients report their dyspnea, fatigue, and emotional function during important daily activities.
EAR-Q
The EAR-Q is a patient reported outcome instrument designed for patients with ear conditions, measuring the appearance of their ears and postoperative adverse effects.
FACE-Q Kids
The FACE-Q is a patient-reported outcome instrument for patients with conditions associated with facial difference aged 6 to 29 years.
Global Ratings of Change Questionnaire (GRCQ)
The GRCQ is a validated questionnaire that provides a global measure to confirm, interpret and generalize findings of health-related quality of life instruments or outcomes. It interprets questionnaire scores with patients participating in controlled trials and in planning new trials.
Gross Motor Function Measure (GMFM)
The GMFM is an observational instrument validated to measure change in gross motor function over time in children with cerebral palsy.
Gross Motor Function Classification System (GMFCS)
The GMFCS is a 5-level classification system that describes the gross motor function of children and youth with cerebral palsy on the basis of their self-initiated movement with particular emphasis on sitting, walking, and wheeled mobility.
HIV Disability Questionnaire (HDQ)
The HDQ is a self-administered questionnaire developed with the aim to describe the presence, severity, and episodic nature of disability experienced by adults living with HIV.
Please see the HDQ Request Form.
Inflammatory Bowel Disease Questionnaire (IBDQ)
The IBDQ is the gold standard in inflammatory bowel disease research. It is a validated tool to measure health-related quality of life in adult patients with inflammatory bowel disease, ulcerative colitis, or Crohn’s Disease.
Measure of Process of Care (MPOC)
The MPOC is a questionnaire for parents and service providers, to better understand and measure the actual experiences and behaviours of those who work with children with long-term health or developmental problems and their families.
MyTransition Application
The MyTransition Application is a software tool that provides an easily and readily accessible central location for young adults with chronic health outcomes to track their transition experiences, keep contacts in one place, and improves communication with their health team.
Polycystic Ovary Syndrome Questionnaire (PCOSQ)
The PCOSQ is a validated questionnaire measuring concerns in women with polycystic ovary syndrome including emotions, body hair, weight, infertility, and menstrual problems.
Perianal Disease Activity Index (PDAI)
The PDAI is a validated index that quantifies severity and important changes in perianal disease.
Premenstrual Symptoms Screening Tool (PSST)
The PSST is validated screening tool to identify women who suffer with Premenstrual Syndrome (PMS) or Premenstrual Dysphoric Disorder (PMDD).
SCAR-Q
The SCAR-Q is a patient-reported outcome instrument for patients with surgical, traumatic, and burn scar.
Quality of Upper Extremity Skills Test (QUEST)
The QUEST is a validated outcome measure designed to evaluate movement patterns and hand function in children 18 months to 8 years with cerebral palsy.
Transition-Q
The Transition-Q measures self-management skills in healthcare in adolescents aged 12 to 18 years across a broad range of chronic health conditions.
The Electronic Hamilton Anatomy of Risk Management (eHARM)
The Electronic Hamilton Anatomy of Risk Management (eHARM) is a cloud-based risk assessment tool designed to streamline and enhance the process of evaluating and managing violence risk in psychiatric patients.
The Aggressive Incidents Scale (AIS)
The Aggressive Incidents Scale (AIS) is an advanced and user-friendly tool designed to accurately record, monitor, and analyze patient aggression and violence by providing a common language for healthcare professionals.
List of tools developed at the Centre for Addiction and Mental Health (CAMH) in Toronto:
Addiction Awareness and Insight Scales – Alcohol Misuse (AASIS-AAS)
A novel and easy to administer self-report measure of illness awareness in alcohol misuse.
Addiction Awareness and Insight Scales – Gambling (AASIS-GAS)
A novel and easy to administer self-report measure of illness awareness in problem and pathological gambling.
Addiction Awareness and Insight Scales – Substance Misuse (AASIS-SAS)
A novel and easy to administer self-report measure of illness awareness in substance misuse that can be easily tailored to any substance.
Alcohol Dependence Scale (ADS) Questionnaire
One of the most widely used research and clinical tools for measuring the severity of alcohol dependence and assessing clients with alcohol problems.
Blood Pressure Awareness Scale and Insight Scale (BASIS)
BASIS is a novel and easy to administer measure of insight into illness scale in metabolic syndrome, as related to hypertension.
Diabetes Awareness Scale and Insight Scale (DAS)
DAS is a novel and easy to administer measure of insight into illness scale for use in diabetes.
Drug Abuse Screening Test (DAST 10)
The DAST-10 provides a brief, simple, practical, but valid method for identifying individuals who are abusing psychoactive drugs. This instrument takes approximately 5 minutes to administer and may be given in either a self-report or in a structured interview format.
Drug Abuse Screening Test (DAST 20)
Similar to the DAST-10 but with its additional 10 items provides a broader assessment of content areas intended for clinical assessment and research purposes.
Drug-Taking Confidence Questionnaire (DTCQ) Alcohol Questionnaire
The Drug-Taking Confidence Questionnaire (DTCQ), a companion tool to the IDTS, is easy to use and allows substance use counsellors and researchers to identify a client’s self-efficacy in relation to 50 drinking situations.
Drug-Taking Confidence Questionnaire (DTCQ) Drug Questionnaire
The Drug-Taking Confidence Questionnaire (DTCQ), a companion tool to the IDTS, allows substance use counsellors and researchers to identify a client’s self-efficacy in relation to 50 drug-taking situations.
Inventory of Drug-Taking Situations (IDTS) Alcohol Questionnaire
A clinical tool that allows substance use counsellors and researchers to assess the situations in which a client has used alcohol over the last year. The IDTS can be used in both individual and group counselling programs with clients whose substance use problems range from mild to severe.
Inventory of Drug-Taking Situations (IDTS) Drug Questionnaire
A clinical tool that allows substance use counsellors and researchers to assess the situations in which a client has used alcohol over the last year. The IDTS generates a separate profile of risk situations for each substance and can be used in both individual and group counselling programs with clients whose substance use problems range from mild to severe.
Nicotine Addiction Awareness Scale
Novel and easy to administer self-report measure of illness awareness in substance misuse that can be easily tailored to any substance. The measure assesses the core domains of illness awareness, including general illness awareness, accurate attribution of symptoms, awareness of the need for treatment, and awareness of negative consequences. With 10-point Likert scales for each item, this scale has the capacity to detect small changes in illness awareness.
Obesity Awareness Scale and Insight Scale (OASIS)
OASIS is a novel and easy to administer measure of insight into illness scale in obesity and related syndromes.
Insight into Psychosis Scale (VAGUS)
An easy to administer insight scale with both self-report and clinician-rated versions that would be sensitive to small changes in insight over brief periods of time, and assess the multidimensionality of insight.