Summary

Appearance and facial function are concepts not well addressed in current pediatric patient-reported outcome measures for facial conditions. To address this issue, Dr. Anne Klassen and Dr. Karen Wong developed the FACE-Q Kids for patients with conditions associated with facial difference aged 6 to 29 years.

FACE-Q Kids is a self-report tool that should be answered independently by patients themselves, without interpretation by the parent(s) or healthcare provider.

The conceptual framework of the FACE-Q Kids scales is comprised of 3 domains as follows: 1) Appearance, 2) Facial Function, and 3) Health-Related Quality of Life. Within these domains, there are a range of concepts of interest which are each measured by an independent scale.

To meet increasing demand for electronic versions of questionnaires, the FACE-Q Kids is available in electronic format as well as in hardcopy. MILO is working closely with translation companies to review electronic conversions of all questionnaires in its library. MILO is also continuing to increase the portfolio of validated translations for questionnaires.