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Privacy Policy

The MACPMSS application (the “Service”) is owned by McMaster University (“we”, “us”, or “our”).

This document explains how your information and Personal Data will be collected, used, stored and protected in accordance with the terms of this Privacy Policy and any applicable legislation. By using the Service, you consent to the terms and conditions as set out in this Policy.

Information we collect

When you use the Service, information we collect may include, but is not limited to

  • Personal opinions
  • A personal identifier assigned by a research organization
  • PMS symptom information
  • Health information related to your menstrual cycle
  • Biological variables including heart rate and movement

While using the Service, we may ask you to provide us with certain personally identifiable information (“Personal Data”). Personal Data may include, but is not limited to:

  • Age
  • Previous diagnosis
  • Medication use

How we use your information and Personal Data

We use your information and/or Personal Data to:

  • Provide the Service that you request;
  • Detect and address any technical or other issues with the Service; and
  • Improve and maintain the Service.

Please be aware that your information could be used for research purposes, but only for research projects approved by a research ethics committee and any other authority required by the applicable laws. We anticipate that for most studies (e.g. those using data collected in the past, duly de-identified) the research ethics committee might waive the need for your specific individual consent. In all cases, the information will be coded so that researchers using the data bank, which may contain your information and/or Personal Data, will not have access to any identifying information. Your email address will never be provided to third parties. We may use your e-mail address to inform you about updates of the Service, research projects you may be entitled to participate through the Service, or any other similar activity. We will limit the volume of these communications to the lowest possible level.

How we store and protect your data

Access to your information and Personal Data is limited, controlled, and managed to make sure that confidentiality is preserved. Your information and Personal Data is kept on a Google database with appropriate physical, administrative and technical safeguards in place. These procedures protect your information from misuse, unauthorized access, interference, alteration, loss and/or disclosure. Despite our security measures, we cannot guarantee total confidentiality in the security of our databases.

Authorized staff at McMaster University can directly access your information and/or Personal data. We may retain your information and/or Personal Data to comply with laws, prevent fraud, resolve disputes, troubleshoot problems, assist with any investigations, enforce our Terms of Use and take other actions otherwise permitted by law.

Disclosure to Other Third Parties

Your information and/or Personal Data may also be disclosed to the following third parties:

  • Government and Regulatory Authorities and or other provincial or federal government agencies.
  • Law enforcement or other third parties pursuant to valid legal process such as a subpoena, litigation or court order or issues of public importance, where disclosure is necessary or appropriate.
  • Others, in the event of a reorganization, merger, or sale we may transfer any and all personal information we collect to the relevant third party.

Who we share your information with

We will share de-identified data for approved scientific research purposes. Aggregated de-identified data about usage of the Service can be shared for statistical purposes with authorized third parties under specific data transfer or data reporting agreements. In all cases, the information will be fully de-identified to prevent any access to personal information and/or identification of individual patients. Under no circumstances will your email address be provided to anyone.

Data transmission

Your information, including Personal Data, may be transferred to — and maintained on — computers located outside of your state, province, country or other governmental jurisdiction, where the data protection laws may differ than those from your jurisdiction.

Your consent to this Privacy Policy followed by your submission of such information represents your agreement to that transfer.

Users from outside of Canada

If you are using the Service from a location outside of Canada, you consent to all your information and/or Personal Data you provide to us will be maintained within Canada. By providing us with any Personal Information through the Service, you consent to transfer of such Personal Information to Canada.

Your rights to access and control your information and Personal Data

The data collected by this application is anonymized through the use of anonymous login. Administrators do not have access to personally identifiable information. For this reason, you cannot request erasure, or a copy of, your information and/or Personal Data – the administrators will not have the ability to identify what data belongs to you. Any questions or concerns about data anonymization should be directed to macpmss@gmail.com.

You understand and agree that you assume all responsibility and risk for your use of the Service, the internet generally, and the documents you post or access and for your conduct. Upon your request, we will take reasonable steps to correct, amend or delete your information and/or Personal Data that is found to be inaccurate, incomplete or processed in a manner non-compliant with this Privacy Policy, subject to the limitations outlined above and except where the burden or expense of providing access would be disproportionate to the risks to your privacy, where the rights of persons other than you would be violated or where doing so is otherwise consistent with applicable law.

Changes to this privacy policy

This Privacy Policy is effective as of March 25, 2021 and will remain in effect except with respect to any changes in its provisions in the future, which will be in effect immediately after being posted on this page.

We reserve the right to update or change our Privacy Policy at any time and you should check this Privacy Policy periodically. McMaster University is committed to assessing, reviewing and updating this Privacy Policy on a case by case basis to meet any changes in regulatory requirements in applicable jurisdictions. Your continued use of the Service after we post any modifications to the Privacy Policy on this page will constitute your acknowledgment of the modifications and your consent to abide and be bound by the modified Privacy Policy.

Opt out

You can stop all collection of your information and/or Personal Data via the Service by uninstalling the Service. You may use the standard uninstall processes as may be available as part of your mobile device or via the mobile application marketplace or network. You can also request to opt-out via email, at macpmss@gmail.com.

Contact us

If you have any questions about this privacy policy, please contact us at macpmss@gmail.com.

[end of MAC-PMSS PRIVACY POLICY]