Resources

Recommended Tutorials

• TCPS2: CORE-2022 Research Ethics Tutorial
• Tutorial for Researchers Conducting Retrospective Review of Health Records

Canadian Research Ethics

• The Tri-Council Policy Statement Ethical Conduct for Research Involving Humans
• Canadian Association of Research Ethics Boards
• CIHR: Best Practices for Protecting Privacy in Health Research
• A Framework for Ethical Decision-Making
• Educational Resources for Research Participants (from the Panel on Research Ethics)

International Research Ethics

Articles and Sites of Interest

• Guidance on Ethics and Equitable Access to HIV Treatment and Care – UNAIDS
• Neuroethics
• Information and Privacy Commissioner – Ontario
• Ethics tips on Oral History from the History Department at Concordia University in Montreal
• The Okanagan Charter: Health and Well-being Research at McMaster – Including Study Recruitment Posting

Internet Research

• Ethical issues in qualitative research on internet communities
• Privacy Commissioner: Best Practices in Survey Research
• Ethical Guidelines for Research Online 
• Ethical & Legal Aspects of Human Subjects Research on the Internet
• Association of Internet Researchers (AoIR)
• Ethical Decision: CUNY: Guidelines for Internet Research with Human Subjects.

Research Data Security and Data Management Plans

• MANTRA: University of Edinburgh course on Research Data Management Training
• The Portage Network: Shared Stewardship of Research Data in Canada
• Data Management Planning Tool
• University of Michigan Safe Computing – a fully comprehensive website on data privacy and security for universities, for example: Sensitive Data Guide to IT Services
• Ontario Information & Privacy Commissioner De-identification Guidelines for Structured Data

Data Encryption

• Data Encryption PowerPoint Presentation by Richard Godsmark, Senior Manager, Security, Technology & Risk, McMaster University, University Technology Services (UTS)
• AES Crypt Data Encryption (Free & Very Secure)
• Office 2010

Hamilton and Area Community

• HWDSB Ethics Review- E-BEST:The Evidence-Based Education and Services Team is the research, and research ethics & review service for the Hamilton-Wentworth District School Board
• HWCDSB Ethics Review: The guidance document on review of external research at Hamilton-Wentworth Catholic District School Board
• Inform Hamilton – the Redbook of Hamilton – Directory of Community Services
• Social Planning and Research Council of Hamilton
• City of Hamilton
• Six Nations Council
• North Hamilton Community Health Centre

Research with Indigenous Peoples

• TCPS2 Chapter 9: Research Involving the First Nations, Inuit and Metis peoples of Canada
• The First Nations Principles of OCAP– standards for how First Nations data should be collected, protected, used or shared
• McMaster Aboriginal Students Health Sciences
• Indigenous Research Protections Act
• Akwesane Good Mind Research Protocol
• Kahnawake Schools Diabetes Prevention Program Research Code of Ethics
• Protocols and Principles for Conducting Research in an Indigenous Context
• Mi’kmaq Ethics Watch
• Model Tribal Research Code
• A Quick Guide to Research in the United States and Alaska Involving Aboriginal Peoples
• Mataatua Declaration on Cultural and Intellectual Property Rights of Indigenous Peoples
• ACADRE: Ethical Issues in Research with Aboriginal Communities
• United Nations Declaration on the Rights of Indigenous Peoples
• Ethical Guidelines for Aboriginal Research – CIHR sponsored conference at Six Nations 2005

Nunavut, NWT and Yukon Territory Research Ethics and Scientific Licenses

• Qaniupitali: Nunavut Inuit Health Survey 2007 – 2008
• ACUNS: Ethical Principles for Conduct of Research in the North
• Negotiating Research Relationships: A Guide for Communities (Inuit Tapiriit Kanatami)
• Negotiating Research Relationships with Inuit Communities: A Guide for Researchers (Inuit Tapiriit Kanatami and the Nunavut Research Institute 2007)
• Northwest Territories scientific licensing requirement for researchers
• Nunavut Research institute for scientific licensing requirement for researchers
• Yukon scientific license resources: Links to the government dept and the guidelines document Science Research Guidelines

Research with Children and Adolescent Populations

• Justice for Youth:  Age Based Laws for Consent
• United Nations: Convention on the Rights of the Child
• Best Practices for Research Involving Children and Adolescents

Community Based Participatory Research

This video features the voices of community members who have worked on community-based research projects in the Toronto area. They discuss how and why they became involved in research, what they did, as well as some of the benefits and challenges of this kind of work.

The video was produced by Lisa Campbell for the Toronto Commuity-Based Research Network (TCBRN). Supported by funding from the CBR Working group of the Health and Learning Knowledge Centre of the Canadian Council on Learning

United States Resources

• Poynter Centre Resources in Ethics
• Public Responsibility in Medicine and Research (PRIM&R)
• Office of Human Subjects Research (NIH)
• Office for Human Research Protections (OHRP)
• (National Institute of Health) computer-based course for Protecting Human Research Participants

Information for Participants in Research

• A Participant’s Bill of Rights
• Information and Privacy Commissioner / Ontario
• Quebec ruling supports confidentiality of researcher’s interviews

Sex and Gender Tutorials

• NIH The Science of Sex & Gender in Human Health
• How to Integrate Sex and Gender into Research
• CIHR Sex and Gender in Biomedical Research